mind & bodyNLM Circulating Now1971–present · United States

Telling the National Cancer Story: Nearly 50 Years of the SEER Program

the gist

The National Cancer Act of 1971 created the Surveillance, Epidemiology, and End Results program, known as SEER, which became a central database of cancer cases in the United States from 1973. Before it, researchers lacked consistent national figures on cancer incidence and mortality, so SEER expanded the surveyed states and cities to build a national map. Its data cover roughly half the country and include patient demographics and tumour type. Analysis of SEER and similar registries from 1995 to 2016 showed rising colorectal cancer among people under 50, which led guidelines to recommend screening from age 45 instead of 50.

so what

Registry data let scientists spot trends that clinical trials can miss, such as rising cancer in younger adults. Its limits matter too, because rural clinics often under-report and the data are weighted toward urban areas.

U.S. National Library of Medicine

Illustrative photo · Surveillance, Epidemiology, and End Results (SEER) Program,…, Public domain, via Wikimedia Commons